The New Zealand Pompe Network was set up in 2011 when there were just 4 patients diagnosed with Pompe.
We felt that with so many rare diseases, Pompe got lost amongst the crowd, so we decided to set up our own group.
NZPN achieved charitable status in 2016.
Our mission is to provide information and support to our New Zealand Pompe community.

​Our Programs

Please contact us anytime about any of our programs.

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Education
​Providing information to affected families

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Advocate for Patients
​We continue to push for treatment funding for patients

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Physician Outreach
​Raising awareness of Pompe disease

New Potential Therapies
​We use our connections to stay informed

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International Connections
​We’ve worked hard to build connections with experts and advocates

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​Building a stronger Pompe community