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  • Home
  • About Us
    • NZPN Board
    • Affiliations
    • NZPN Membership
    • Our Patients >
      • Freda
      • Allyson
      • Christine
      • Dean
      • Samantha
      • Laurie
  • About Pompe
    • What is Pompe Disease?
    • Symptoms
    • Treatments
    • Recommended Links
  • News and views
    • NZPN Conference 2018 Summary
    • Press Releases
    • Personal Media Stories
    • Blog
    • Allyson's Florida Blog
    • PHARMAC & Govt >
      • Party stances on funding Rare Diseases
  • Diagnosing Kiwis
  • Clinical Trials
  • Glossary
  • Accessible NZ
  • Contact us
  • Living with Pompe
  • Donate