Welcome to the New Zealand Pompe Network
This site has been set up by people who have Pompe Disease, specifically for people with Pompe Disease, their families, friends and supporters.
We offer support, information, friendship and hope to those affected by Pompe.
There are 11 people diagnosed with Pompe Disease in NZ that we know of.
NZPN is incorporated under the Charitable Trusts Act 1957
and is a registered charity - Registration Number CC54486
and is a registered charity - Registration Number CC54486
Important information regarding questions raised about the COVID vaccines for us Pompe people.
IF you are interested in getting gene therapy in future, you should steer away from the vaccines that use AAV. Stick to the ones that use mRNA.
Here are a couple of links explaining the difference...
https://masseyeandear.org/covid-19/vaccine
https://www.cdc.gov/.../vacc.../different-vaccines/mrna.html
IF you are interested in getting gene therapy in future, you should steer away from the vaccines that use AAV. Stick to the ones that use mRNA.
Here are a couple of links explaining the difference...
https://masseyeandear.org/covid-19/vaccine
https://www.cdc.gov/.../vacc.../different-vaccines/mrna.html
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Site created: 7th November 2010
Site updated: 30th December 2020
Site updated: 30th December 2020
