New Zealand Pompe Network
  • Home
  • Our People
    • Our Patients >
      • Freda
      • Allyson
      • Christine
      • Dean
      • Samantha
      • Yakuta
      • Laurie
  • About Pompe
    • What is Pompe Disease?
    • Symptoms
    • Diagnosis
    • Treatments
    • Recommended Links
  • News and views
    • NZPN Conference 2018 Summary
    • Press Releases
    • Personal Media Stories
    • Blog
    • Allyson's Florida Blog
    • Success Stories >
      • Maryze
      • Brad
      • Monique
      • Ben
      • Brian
  • Clinical Trials
  • Air Travel
  • Donations & Fund Raising
  • Glossary
  • Accessible NZ
  • NZPN Membership
  • PHARMAC & Govt
    • Party stances on funding Rare Diseases
  • Contact us
  • Diagnosing Kiwis

Welcome!

Welcome to the New Zealand Pompe Network

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This site has been set up by people who have Pompe Disease, specifically for
​people with Pompe Disease, their families, friends and supporters.


We offer support, information, friendship and hope to those affected by Pompe.


There are 14 people diagnosed with Pompe Disease in NZ that we know of.

NZPN is incorporated under the Charitable Trusts Act 1957
and is a registered charity
- Registration Number CC54486

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Site created: 7th November 2010
Site updated:
 22nd December 2021
Thank you for visiting us @ NZPN
  • Home
  • Our People
    • Our Patients >
      • Freda
      • Allyson
      • Christine
      • Dean
      • Samantha
      • Yakuta
      • Laurie
  • About Pompe
    • What is Pompe Disease?
    • Symptoms
    • Diagnosis
    • Treatments
    • Recommended Links
  • News and views
    • NZPN Conference 2018 Summary
    • Press Releases
    • Personal Media Stories
    • Blog
    • Allyson's Florida Blog
    • Success Stories >
      • Maryze
      • Brad
      • Monique
      • Ben
      • Brian
  • Clinical Trials
  • Air Travel
  • Donations & Fund Raising
  • Glossary
  • Accessible NZ
  • NZPN Membership
  • PHARMAC & Govt
    • Party stances on funding Rare Diseases
  • Contact us
  • Diagnosing Kiwis