The PHARMAC Rare Disorders Advisory Committee has RECOMMENDED the funding of 2nd generation enzyme replacement therapy (ERT) Nexviazyme (avalglucosidase alfa) for treating Pompe Disease. This recommendation is for both infantile onset Pompe (IOPD) and Late onset Pompe (LOPD).
To read the full press release, please click on the link below.
| press_release_nzpn__1_.docx |
Welcome to the New Zealand Pompe Network
This site has been set up by people who have Pompe Disease, specifically for
people with Pompe Disease, their families, friends and supporters.
We offer support, information, friendship and hope to those affected by Pompe.
There are 12 people diagnosed with Pompe Disease in NZ that we know of.
This site has been set up by people who have Pompe Disease, specifically for
people with Pompe Disease, their families, friends and supporters.
We offer support, information, friendship and hope to those affected by Pompe.
There are 12 people diagnosed with Pompe Disease in NZ that we know of.
|
|
|
Site created: 7th November 2010
Site updated: 17th April 2025