Welcome to the New Zealand Pompe Network
This site has been set up by people who have Pompe Disease
The New Zealand Pompe Network (NZPN) is dedicated to supporting individuals diagnosed with Pompe Disease in New Zealand. Established in 2011, the network aims to provide information and support to the Pompe community. NZPN achieved charitable status in 2016, further solidifying its commitment to the cause. The network offers a platform for Pompe patients, their families, and friends to connect, share experiences, and access the latest information on treatment, clinical trials, and new therapies. The network also collaborates with other Pompe groups worldwide and the broader Rare Diseases community to ensure that all Pompe patients have access to the most up-to-date and accurate information.
There are 12 people diagnosed with Pompe Disease in NZ that we know of.
The New Zealand Pompe Network (NZPN) is dedicated to supporting individuals diagnosed with Pompe Disease in New Zealand. Established in 2011, the network aims to provide information and support to the Pompe community. NZPN achieved charitable status in 2016, further solidifying its commitment to the cause. The network offers a platform for Pompe patients, their families, and friends to connect, share experiences, and access the latest information on treatment, clinical trials, and new therapies. The network also collaborates with other Pompe groups worldwide and the broader Rare Diseases community to ensure that all Pompe patients have access to the most up-to-date and accurate information.
There are 12 people diagnosed with Pompe Disease in NZ that we know of.
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Site created: 7th November 2010
Site updated: 10th June 2026