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Date for Florida trip

11/3/2011

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This morning i received an email asking me to be in Florida on the 2nd of April.  So now I can get organised!  It is very very exciting!  I'm very sad that I have to leave my family for such a long time.  At the same time I am very grateful to Dr Byrne and his team at the University of Florida and BioMarin for giving me such a wonderful opportunity to take part in this trial. 
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  • Home
  • Our People
    • Our Patients >
      • Freda
      • Allyson
      • Christine
      • Dean
      • Samantha
      • Yakuta
      • Laurie
  • About Pompe
    • What is Pompe Disease?
    • Symptoms
    • Diagnosis
    • Treatments
    • Recommended Links
  • News and views
    • NZPN Conference 2018 Summary
    • Press Releases
    • Personal Media Stories
    • Blog
    • Allyson's Florida Blog
    • Success Stories >
      • Maryze
      • Brad
      • Monique
      • Ben
      • Brian
  • Clinical Trials
  • Air Travel
  • Donations & Fund Raising
  • Glossary
  • Accessible NZ
  • NZPN Membership
  • PHARMAC & Govt
    • Party stances on funding Rare Diseases
  • Contact us