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Sunday

29/8/2011

1 Comment

 
This is the end of my second week in Florida.  I'm finally getting a little more settled and into a routine which is good for the mind...and body!

I've tested out the bike machine in the gym, and didn't fall off!  Ok it's stuck to the floor which makes things a bit easier but I still didn't fall off!  Next week i'm tackling the swimming pool.  But first I need to find out if there is a door leading to the swimming pool, other than the one that you have to reach by walking through the dining room.  The thought of parading through there in my togs while people are eating...I don't want to be deported.

Frozen meals; I thought they were going to be horrendous like they were in "the old days".  But actually, they're pretty good!  The hotel does dinners Monday to Thursday, so the other 3 days you have to fend for yourself.  I'm getting used to eating alone looking like Nigel No-Mates down in the dining room.  I keep myself entertained by watching the tiny wee lizards that scamper around outside the dining room window by the pool.  It's actually very calming :)

Anyway, Sugar Gliders.  Why can we not have them in New Zealand?  They're one of the cutest wee animals i've ever seen in my entire life, and I need some.  They're quite happy to zip around on your arms or up your jersey and snuggle in. 

This is me and senor (or senorita) Sugar Glider at a flea market yesterday.  Maybe once we convince Pharmac to fund ERT we can get a package deal - 1 Sugar Glider FREE with each treatment!  Sign me up for both thanks!
Picture
1 Comment
Louise Clarkson
29/8/2011 10:43:55 am

Hello Allyson,
Sugar Gliders are very cute, do they have rabies ??
When will they know if it the treatment is working?
You look really well , must be the sunshine.
love
Louise. xx

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  • Home
  • Our People
    • Our Patients >
      • Freda
      • Allyson
      • Christine
      • Dean
      • Samantha
      • Yakuta
      • Laurie
  • News and views
    • Press Releases
    • Personal Media Stories
    • Blog
    • Allyson's Florida Blog
    • Success Stories >
      • Maryze
      • Brad
      • Monique
      • Ben
      • Brian
  • About Pompe
    • What is Pompe Disease?
    • Symptoms
    • Diagnosis
    • Treatments
    • Recommended Links
  • Clinical Trials
  • Air Travel
  • Donations & Fund Raising
  • Glossary
  • Accessible NZ
  • NZPN Membership
  • NZPN Conference 2018 Summary
  • PHARMAC & Govt
    • Party stances on funding Rare Diseases
  • Contact us