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Wednesday - day after infusion #2

8/9/2011

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Another infusion done and dusted.  I slept through it!  The nurses and doctors at Shands Hospital are so wonderful.  It's a pleasure to be there among such lovely people. 

I went along to the hospital again today, and one of the nurses asked "where's Russ"?  Russ, is our bear who travels the world, usually with my husband Steve.  Steve is in the Navy so he travels a LOT.  Russ has had his photo taken in all sorts of places world wide but had never been to Florida, therefore he was itching to come along on this trip.  Anyway, Russ just happened to be in my purse so Betsy, the lovely nurse who has taken a shine to Russ, gave him his very own Florida Gators jersey and blanket :)  So now he's an official Gators supporter!  Thank you Betsy, I think that's awesome! :)   

Today while up at the hospital the OZ and I went to see Mike Stanzione.  He's looking very good!  He may be off to New Jersey next week.  Next step is home eh Mike!  If anyone deserves it, it's you my friend :)

Woodpeckers - even power poles aren't safe!  I saw two of them yesterday having a crack at a power pole, they're so cool looking.  I have heard them in forests tap tap tapping before, but never actually set eyes upon them.  I think I will add them to my inventory of what I would love to bring with me back to NZ.  We've got some huge trees out the back of our place that I'm sure Woody and his mates would be quite happy in.  Maybe they will even chase those pesky magpies away!

For information on Woody Woodpecker go here: http://pelotes.jea.com/woodpeck.htm

Today's top blog tip - Sandfly inhalation whilst mobility scootering - avoid it.  Fortunately I'm not a vegetarian.
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Betsy and Russ in his Gators outfit!
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  • Home
  • Our People
    • Our Patients >
      • Freda
      • Allyson
      • Christine
      • Dean
      • Samantha
      • Yakuta
      • Laurie
  • About Pompe
    • What is Pompe Disease?
    • Symptoms
    • Diagnosis
    • Treatments
    • Recommended Links
  • News and views
    • NZPN Conference 2018 Summary
    • Press Releases
    • Personal Media Stories
    • Blog
    • Allyson's Florida Blog
    • Success Stories >
      • Maryze
      • Brad
      • Monique
      • Ben
      • Brian
  • Clinical Trials
  • Air Travel
  • Donations & Fund Raising
  • Glossary
  • Accessible NZ
  • NZPN Membership
  • PHARMAC & Govt
    • Party stances on funding Rare Diseases
  • Contact us