Bruce
Welcome!
I was diagnosed with Type 2 Late-Onset Pompe in September 2011 at age 46.
This was not too much of a shock really as my Twin Sister (Allyson) also has Pompe.
It is frustrating to know that at present our "Government and Their Drug Agency Pharmac" have seen fit not to fund treatment for Late Onset Pompe.
I was diagnosed with Type 2 Late-Onset Pompe in September 2011 at age 46.
This was not too much of a shock really as my Twin Sister (Allyson) also has Pompe.
It is frustrating to know that at present our "Government and Their Drug Agency Pharmac" have seen fit not to fund treatment for Late Onset Pompe.