2022 RARE Patient Advocacy Summit

Rare Life. Bonded Together September 12-14, 2022 San Diego, CA The first conference attended since WORLD in March 2020!  It was great to be able to get out amongst people again. It was a full schedule with many topics discussed.  I was inspired by all of those who strive to keep showing up,...

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WORLD Symposium 2023

If you’re heading to the WORLD Symposium in Orlando in 2023, click the link below for the latest updates WORLD Symposium 2023 WORLDSymposium 2023 in Orlando will be the place to connect, collaborate, communicate and continue to make global progress in lysosomal disease research. The LIVE...

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