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New Zealand Pompe Network

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Below are links to news items

Press Releases

Personal Media Stories

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Allyson's Florida Blog

Success Stories from people on treatment :)

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Home
Our People
- Our Patients >
  - Freda
  - Allyson
  - Christine
  - Dean
  - Samantha
  - Yakuta
  - Laurie
News and views
About Pompe
Clinical Trials
Air Travel
Donations & Fund Raising
Glossary
Accessible NZ
NZPN Membership
NZPN Conference 2018 Summary
PHARMAC & Govt
- Party stances on funding Rare Diseases
Contact us