Well, today I found out that our dumbass government thinks i’m not worth a crap. Here is the email I have sent to our local Minister of Parliament this evening. I will post his reply when i get one. I would appreciate anyone writing their thoughts for me to pass onto our idiots in charge....
In a period of TOTAL annoyance (even moreso than usual) at the absolute disregard for Pompe patients in New Zealand, I decided to write to PHARMAC to see where my application for Myozyme was standing. Please read this letter below, and also note the people to whom it was CCd. Also included are...
We really appreciate the support that we are getting from all around the world in our fight to get treatment for Pompe here in New Zealand. Thank you everyone, it’s great to know we are not alone!