Recently I met a lovely man named Dave Ross who has a rare disease called Cowden Syndrome. 2 years ago he set up a virtual support group for male patients and caregivers to help support the mental health side of living with a Rare Disease/Disorder.
David has just set up additional meetings for people in Asia, Pacific and Japan.
If you are interested in attending these really helpful and worthwhile meetings, please email David at
firstname.lastname@example.org for a zoom invite.
The next meeting is January 18th 2023 at 8am GMT
To help you work out what time that is in your region, here’s a link to a time zone converter