Now what do I do?
You’ve been thrown into this new world.
You’re dealing with words you’ve never heard before, people you never knew before, medical tests you never knew existed…
Find your tribe
There are many places you can go for help and information. Here are just some of them.
Cure Pompe Disease
Pompe for Girls only. No boys allowed!
Pompe Meetings Upcoming
Pompe Friends – A group for adult patients 18+
Pompe – Diet and Nutrition – Ideas and Recipe Group
Hints and Tips for living with Pompe