New Zealand Pompe Network
Home
NZPN Team
NZPN Board
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NZPN Membership
Our Patients
>
Freda
Allyson
Christine
Dean
Samantha
Laurie
About Pompe
What is Pompe Disease?
Symptoms
Treatments
Recommended Links
News and views
NZPN Conference 2018 Summary
Press Releases
Personal Media Stories
Blog
Allyson's Florida Blog
PHARMAC & Govt
>
Party stances on funding Rare Diseases
Diagnosing Kiwis
Clinical Trials
Glossary
Accessible NZ
Contact us
Living with Pompe
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Welcome to the New Zealand Pompe Network
This site has been set up by people who
have
Pompe Disease,
specifically
for
people with Pompe Disease, their families, friends and supporters.
We offer support, information, friendship and hope to those affected by Pompe.
There are
11
people diagnosed with Pompe Disease in NZ that we know of.
Site created:
7th November 2010
Site updated:
27th June 2024
Home
NZPN Team
NZPN Board
Affiliations
NZPN Membership
Our Patients
>
Freda
Allyson
Christine
Dean
Samantha
Laurie
About Pompe
What is Pompe Disease?
Symptoms
Treatments
Recommended Links
News and views
NZPN Conference 2018 Summary
Press Releases
Personal Media Stories
Blog
Allyson's Florida Blog
PHARMAC & Govt
>
Party stances on funding Rare Diseases
Diagnosing Kiwis
Clinical Trials
Glossary
Accessible NZ
Contact us
Living with Pompe
Donate